Feb 18

Purdue University, West Lafayette, IN (2)

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Edited: Oct 31

(Scroll for multiple responses)

Celiac College Student Survey completed August 2019

 

Food Service Vendor

College Chefs

 

What stage are you in college?

Junior

 

Please describe your meal plan for each year there so far. Include if your school required any of these decisions. If you are eating in a greek house or other club type arrangement include that as well.

I was in a dorm freshman year, diagnosed Celiac December of freshman year. I ate in the dining courts and frequently got sick even after talking to the Disability resource center and getting my food made by certain people. Sophomore year I lived in a sorority that used “college chefs” and they did an awful job of remembering to make me gluten free food and they neglected to avoid cross contamination. Junior year I am living in the sorority again and talked to the housing board so that I am not paying for a meal plan. I am cooking for myself in the sorority kitchenette.

 

How many years ago were you diagnosed with celiac?

1-3

 

How sensitive to gluten are you?

Extremely: React to even small traces

 

How would you describe the worst reaction you have had since diagnosis?

Really bad

 

Does your college handle celiac food restrictions as you expected they would when you selected your school?

Somewhat what I expected

 

Grade your college on feeding celiac students

B

 

Explain your rationale for that grade

They are improving, but still not great at avoiding going contamination.

 

Check all that apply

My school is large with many dining halls, Ability to feed me varies somewhat across dining halls, I avoid certain dining halls that I don't think are safe, I have great options at some of the dining halls, I assumed they could feed me and didn't think about it before I arrived

 

Did you register with your students disabilities office for accommodations? If yes, describe.

Yes, after getting diagnosed in college

 

Are there resources (nutritionists, chefs, peer support groups) to help ensure you are receiving safe nutritious food? Describe

No

 

How many times have you been glutenized in your dining hall?

More than 3

 

Describe your biggest celiac challenge at college and how you manage it

Being told something didn’t have gluten, taking a bite, and there being ingredients in it that the chef decided to add to the recipe

 

If you were in charge of your school's dining, what changes would you implement to better feed celiac students? Would your school be open to these suggestions?

A gluten free menu so Celiac’s know what their options are

 

Did celiac impact your housing decision? How? Is there a certain dorm you recommend for celiacs? Why?

I recommend Hillenbrand for Celiac’s because there are kitchenettes on every floor

 

Your advice to new celiac kids for managing the dining halls? Favorite dining hall(s)?

Hillenbrand has gluten free fridays. Wylie has actual gf options, Ford is a mess and too busy to accommodate.

 

Your advice to new celiac kids for eating in the dorm? Favorite snacks? Places that deliver?

Popcorn and fruit. Places that deliver? None

 

Your advice to new celiac kids on preparing before they come? Or doing upon first arrival?

Bring a blender and make smoothies in your dorm

 

Your advice to new celiac kids on managing keg parties and alcohol scene?

Dont

 

Grade your college town area for celiac friendliness

B+

 

Favorite places to eat in town or foodshop?

Basil Thai

 

Anything else you would like to add?

Places are owned by families that don’t speak English so it’s hard to eat there

 

 

Celiac College Student Survey completed February 2019

 

Food Service Vendor?

Not sure

 

What stage are you in college?

Senior

 

Please describe your meal plan for each year there so far.

Freshman and sophomore year I was in student housing so I had a meal plan with the dining courts. That is required if living in campus housing. Junior and senior year I moved off campus in a house with roomates where we have our own kitchen- it is a shared kitchen though.

 

How many years ago were you diagnosed with celiac?

5+

 

How sensitive to gluten are you?

Extremely: React to even small traces

 

How would you describe the worst reaction you have had since diagnosis?

Really bad

 

Does your college handle celiac food restrictions as you expected they would when you selected your school?

Mostly what I expected

 

Grade your college on feeding celiac students

B+

 

Explain your rationale for that grade

One of the dining courts had a great RD who had personal experiences with her son having allergies. There were incidences of getting cross contaminated.

 

Check all that apply

My school is large with many dining halls, Ability to feed me varies greatly across dining halls, I am only comfortable eating in a few dining halls, I have great options at some of the dining halls, Ability to eat well was a critical part of my college selection process, I asked alot of questions before I came but the reality was different

 

Did you register with your students disabilities office for accommodations? If yes, describe.

Yes. I registered and working with the DRC- who were very helpful.

 

Are there resources (nutritionists, chefs, peer support groups) to help ensure you are receiving safe nutritious food? Describe

There are campus RDs.

 

How many times have you been glutenized in your dining hall? If you didn't answer NONE, please explain what happened and how school responded.

More than 3

 

Describe your biggest celiac challenge at college and how you manage it

Going to dining halls/on campus eating that aren't as familiar. I usually just eat at the places I know I do ok at. I also ask them to change gloves and tell them it's for gluten intolerance/allergy.

 

If you were in charge of dining, what changes would you implement to better feed celiac students? Would your school be open to these suggestions?

I would greatly improve the ingredient labels for each food item! Some things would be labeled, others would not be. I would also update the dininig court app so it would be more reliable with nutrition facts, ingredients and allergen information for each food item and dining hall. They might be depending on who I would speak with.

 

Did celiac impact your housing decision? How? Is there a certain dorm you recommend for celiacs? Why?

I have asthma so that impacted my housing decision more to ensure I got air conditioning. I knew 2 of the dining courts were better for gf and I was able to live in one of them. I recommend Wiley dining hall for eating gluten free.

 

Your advice to new celiac kids for managing the dining halls? Favorite dining hall(s)?

Get in touch with the Registered Dietitian! They can be super helpful and should know which dining courts have better options.

 

Your advice to new celiac kids for eating in the dorm? Favorite snacks? Places that deliver?

If able, have your separate microwave and refrigerator- don't share one with your roomate. Your doctor and DRC can work with you on that! Keep nonperishable snacks under your bed in a tote so you always have something!

 

Your advice to new celiac kids on preparing before they come? Or doing upon first arrival?

Do your research! Reach out to the college you're interested in and see how their dining courts are and if there are grocery stores/restaurants nearby that have gf options.

 

Your advice to new celiac kids on managing keg parties and alcohol scene?

Personally, I don't put myself in that environment. But, I have heard most wines are fine and some hard ciders are. I know beer is a no go- it contains gluten. Watch your drink-you should do this anyways.

 

Grade your college town area for celiac friendliness

A

 

Favorite places to eat in town or foodshop?

Basil Thai

 

Anything else you would like to add?

It gets easier!

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