Celiac College Student Survey submitted October 2019 Food Service Vendor Aramark, but switched to Sedexo What stage are you in college? Recent Graduate Please describe your meal plan for each year there so far. Include if your school required any of these decisions. If you are eating in a greek house or other club type arrangement include that as well. I was a housing student staff member so I had a meal swipe heavy plan that came with the position How many years ago were you diagnosed with celiac? 5+ How sensitive to gluten are you? Very: React to small amounts How would you describe the worst reaction you have had since diagnosis? Bad Does your college handle celiac food restrictions as you expected they would when you selected your school? Mostly not what I expected Grade your college on feeding celiac students D Explain your rationale for that grade Attempts would be made, for instance we had a gluten free toaster by my second semester of senior year, but anything beyond the set gluten free entree and side required you to spend over an hour in the dining hall trying to locate someone willing to make a frozen pizza. The staff was not well trained and leadership was not receptive to suggestions. Check all that apply My school is small and has only a few dining halls, I can find some but not enough food in any of the dining halls, I assumed they could feed me and didn't think about it before I arrived Did you register with your students disabilities office for accommodations? If yes, describe. Yes, but I was told they only offer academic accommodations Are there resources (nutritionists, chefs, peer support groups) to help ensure you are receiving safe nutritious food? Describe There was a nutritionist my first year who tried to assist but didn't know very much about gluten and at one point recommended an item I knew had gluten so I gave up. How many times have you been glutenized in your dining hall? 3 If you didn't select NONE, what happened and how did school respond? The first time there was a gluten filled entrée put in the glutenless entrée spot and I emailed them to tell them how ill I was. They said they retrained the weekend staff after that. The worst time was at the grand opening of our new dining hall when the director of dining said there was gluten free pasta. Once I'd eaten a few bites he came up to say he was incorrect it was whole wheat pasta. He apologized profusely and offered a meeting. When I met with him he made false promises. Describe your biggest celiac challenge at college and how you manage it Finding enough food to eat. I ate Starbucks egg bites most of the time because it was the safest food that had enough protein to sustain me. Another factor was time. I didn't have time to stand in the dining hall asking for a gluten free pizza to be made in between classes! This was definitely not factored into the dining program's master plan. If you were in charge of your school's dining, what changes would you implement to better feed celiac students? Would your school be open to these suggestions? I would model it after universities who do it right. I went to a training at Washington University in Saint Louis and they had gluten-free grab and go sandwiches and I was blown away. That alone would have radically improved my dining experience Did celiac impact your housing decision? How? Is there a certain dorm you recommend for celiacs? Why? I was an RA and then a security manager so I had no say in my housing decisions Your advice to new celiac kids for managing the dining halls? Favorite dining hall(s)? Don't come to SLU. Living in campus is very important for development at a university, particularly in an environment catered to first years. Find a university that will feed you and do not get convinced to live in an on-campus apartment with a kitchen for your first year. Your advice to new celiac kids for eating in the dorm? Favorite snacks? Places that deliver? Ask for delivery service gift cards for Christmas Your advice to new celiac kids on preparing before they come? Or doing upon first arrival? Start emailing dining services before you arrive and keep a relationship with them if you decide to attend! Your advice to new celiac kids on managing keg parties and alcohol scene? Hard seltzer is your friend! Luckily it's popular right now so it's likely you'll have access to White Claw or Truly. Grade your college town area for celiac friendliness B+ Favorite places to eat in town or foodshop? Chipotle, The Cup, Blk Mkt Anything else you would like to add? Your dietary restrictions do not define you, but student organizations should be asking about your dietary issues when they put on events. They have the budget so go ahead and email whoever is in charge and ask what gluten free options they'll have!

Celiac College Student Survey completed October 2019 Food Service Vendor Aramark What stage are you in college? Freshman Please describe your meal plan for each year there so far. Include if your school required any of these decisions. If you are eating in a greek house or other club type arrangement include that as well. Unlimited How many years ago were you diagnosed with celiac? 5+ How sensitive to gluten are you? Extremely: React to even small traces How would you describe the worst reaction you have had since diagnosis? Really bad Does your college handle celiac food restrictions as you expected they would when you selected your school? Totally yes, was what I expected Grade your college on feeding celiac students A Explain your rationale for that grade There is always food available Check all that apply Ability to feed me varies somewhat across dining halls, I feel comfortable eating at any dining hall on campus, I frequent certain dining halls because they have more options although all are safe, Ability to eat well was a critical part of my college selection process Did you register with your students disabilities office for accommodatio ns? If yes, describe. No Are there resources (nutritionists, chefs, peer support groups) to help ensure you are receiving safe nutritious food? Describe Yes How many times have you been glutenized in your dining hall? NONE Describe your biggest celiac challenge at college and how you manage it Drinking If you were in charge of your school's dining, what changes would you implement to better feed celiac students? Would your school be open to these suggestions? They would be open and more bread type foods Did celiac impact your housing decision? How? Is there a certain dorm you recommend for celiacs? Why? Yes my dorm is adjacent to the dining hall with a gluten free section Your advice to new celiac kids for managing the dining halls? Favorite dining hall(s)? Core is very good and there is stuff you can eat outside the gluten free section Your advice to new celiac kids for eating in the dorm? Favorite snacks? Places that deliver? Popcorn Your advice to new celiac kids on preparing before they come? Or doing upon first arrival? Bring snacks but not too many Your advice to new celiac kids on managing keg parties and alcohol scene? Pregame Grade your college town area for celiac friendliness B- Favorite places to eat in town or foodshop? Chipotle and smokin pig Anything else you would like to add? No

Celiac College Student Survey completed October, 2019 Food Service Vendor College Chefs What stage are you in college? Junior Please describe your meal plan for each year there so far. Include if your school required any of these decisions. If you are eating in a greek house or other club type arrangement include that as well. sorority house meal plan through college chefs How many years ago were you diagnosed with celiac? 3-5 How sensitive to gluten are you? Extremely: React to even small traces How would you describe the worst reaction you have had since diagnosis? Moderate Does your college handle celiac food restrictions as you expected they would when you selected your school? Not at all what I expected Grade your college on feeding celiac students C- Explain your rationale for that grade React at least once a week if I eat something other than food off the salad bar. Am told things are gluten free when they are not. Don’t listen to suggestions. Very few options. Very expensive and extremely frustrating. The school’s dining halls are worse in my experience Check all that apply My school is large with many dining halls, Ability to feed me varies greatly across dining halls, I avoid certain dining halls that I don't think are safe, I can't find any good options in the dining halls at all, I assumed they could feed me and didn't think about it before I arrived, I asked alot of questions before I came but the reality was different Did you register with your students disabilities office for accommodations? If yes, describe. No, but i met with a director of the dining hall and I met with the chef at my sorority house several times freshmen year to voice my concerns Are there resources (nutritionists, chefs, peer support groups) to help ensure you are receiving safe nutritious food? Describe The are nutritionists, but they have no effect on what food is available to me. How many times have you been glutenized in your dining hall? More than 3 If you didn't select NONE, what happened and how did school respond? I didn’t tell the school’s dining hall after being glutened because the employees don’t seem to care or understand what gluten is. My sorority house gave me a discount, but I’m forced to be on the meal plan and can’t opt out. Describe your biggest celiac challenge at college and how you manage it There is little understanding about celiac, allergies, how to prepare food for people with allergies. All I feel safe eating is salad, and no matter what I do or suggest nothing is changed. If you were in charge of your school's dining, what changes would you implement to better feed celiac students? Would your school be open to these suggestions? I don’t think the school would make big enough changes. There are other people with celiac I talked to and they’ve been glutened several times at the school and sorority house. I would overhaul the system they have completely, add more options, and hire people who will actually follow allergy training. Did celiac impact your housing decision? How? Is there a certain dorm you recommend for celiacs? Why? I would stay in a suite style dorm because there are kitchenettes so you can cook for yourself so you feel safe eating. Your advice to new celiac kids for managing the dining halls? Favorite dining hall(s)? Lakeside will tell you their allergy station is gluten free. However, it isn’t often open, there is only one dish per day, and I have been glutened there before. Your advice to new celiac kids for eating in the dorm? Favorite snacks? Places that deliver? Frutta bowls, chipotle, Zoe’s, tropical smoothie cafe, blaze pizza, heat pizza, the five, central Mesa, and Jim n nicks are great for celiac if you explain the condition. I mircrowave a lot of oatmeal, veggies, and rice if I need a meal in my dorm. Your advice to new celiac kids on preparing before they come? Or doing upon first arrival? Make sure to talk with your parents about needing to budget to buy a lot of snacks and food to have in your dorm. If you are extremely sensitive to gluten, be very careful of the dining halls because they say they will accommodate you, but me and other celiacs have gotten sick. If you’re joining a Greek meal plan, many won’t let you off the meal plan and are not accommodating. There are salad bars but most of the time that’s all you can eat. Your advice to new celiac kids on managing keg parties and alcohol scene? Bring your own. Do your research. Grade your college town area for celiac friendliness C+ Favorite places to eat in town or foodshop? Frutta bowls, tropical smoothie, chipotle, Jim and nicks, central Mesa, real and rosemary. The five, heat pizza, baked bear, heat pizza Anything else you would like to add? I love Alabama, but to be completely honest with you the situation for celiac is not good. Be prepared to eat a lot of salads and buy yourself a lot of food. Don’t trust when people in the dining halls say something is gluten free because there seems to be a lot of issues with cross contamination.